New Recommendations Address ME/CFS Diagnosis and Management
The urgency of appropriate recognition and management of ME/CFS has increased as growing numbers of people are exhibiting signs and symptoms of ME/CFS following acute COVID-19 infection.
New Clinical Guidelines for ME/CFS
The clinicians make it clear that no treatments have been shown to be curative. Instead, they focus on advice for managing and treating symptoms like orthostatic intolerance, cognitive dysfunction, pain and sleep dysfunction.
Finished reading: Born A Crime: Stories from a South African Childhood by Trevor Noah šI didn’t love it, but it is an interesting story of growing up as mixed race in post-apartheid South Africa. Includes harrowing stories of abuse.
The study
Risk is cut, but not eliminated. We have to remain careful.
Vaccines cut risk of ālong covidā in half, major study finds
Excellent but anger-making article about Long COVID
COVID-19 Long-Haulers Are Fighting for Their Future - The Atlantic
They and other long-haulers want studies that treat long COVID holistically, rather than focusing on the single organ a researcher happens to specialize in. They want more attention to common symptoms, including neurological ones (which are among the scariest) and menstrual changes (which are among the most overlooked). And they want researchers to ask them what they already know.
Woo hoo, going dancing tonight for the first time since March 2020! Outdoor concert at the local venue, hubby playing bass in the band. I’ll still be COVID careful but am looking forward to boogeying.
So the local bread baker made āsesame Sirarcha bread.ā I made French toast with it, added avocado and fried eggs, topped with chili crisp. Yum!
Just had my eyes dilated at the doctorās. Canāt drive for another hour so am treating myself to takeout dinner. Seafood crepes for the win.
Currently reading: Jack: A Novel by Marilynne Robinson š
Currently reading: Born A Crime: Stories from a South African Childhood by Trevor Noah š
Finished reading: The Water Dancer by Ta-Nehisi Coates š A good read. Dragged a bit in the middle but overall great characters and a good glimpse into a fictionalized version of life under the terrible institution of slavery.
Finished reading: Home by Marilynne Robinson š
I’ve been worrying about this:
The data from vaccinated Israeli medical staff shows that while breakthrough infections arenāt life-threatening, they are also not benign: 19 percent of cases led to so-called ālong-haul COVID-19”
Pelvic Floor Health This article might be paywalled but it had the best language Iāve seen to deal with our changing ideas about gender. It refers at one point to āpeople with penisesā instead of saying āmen.ā I laughed but I also love it.
Apple Maps Error: A Server with the specified hostname could not be found.
I had been having some trouble with Apple Maps and also with Waze in recent weeks. First Apple Maps failed, with the error “A Server with the specified hostname could not be found” but Waze continued to work. Then yesterday, Waze also stopped working with an “unknown error” message.
Apple Support helped me to troubleshoot this today. It turned out that the new firewall that comes with the latest version of 1Blocker was blocking first Apple Maps and then Waze. Once I turned off their firewall, both GPS applications started to work again.
I have sent a message to the 1Blocker support email suggesting that they tune their firewall.
But I canāt find evidence for this statistic
“It has been estimated that 10 percent of children who contract covid will have chronic symptoms such as heart conditions, decreased lung function and behavioral abnormalities. “
10 arguments to consider before calling long covid psychosomatic
We are in a situation where a large number of people worldwide are presenting with an illness that currently cannot be objectively explained. It seems that medicine was caught unprepared and that it doesnāt know what to do and what to think.
And then I had a great conversation with @cm! Today was the day to reach and talk to interesting strangers. Turns out Chad and I have a lot in common and we will be recording on Home | Racket soon.
I had a great chat with @warner this morning. We connected thanks to Micro.Camp and had a fascinating, wide-ranging conversation. Thank you, Laurence!
Agile in Writing
I came across this today in the Chronicle of Higher Ed:
I cannot possibly overemphasize the fact that I am neither unusually gifted nor very industrious nor really disciplined. I finished all of that writing with a deceptively simple system of doing just a little bit of work, mostly every day, and trusting that the ābrillianceā (or acceptability) of the whole would come together through the drudgery of many, many, many (many) smaller, less-brilliant parts.
A New Series on Scholarly Productivity: āAre You Writing?ā
The author is summing up the Agile project management process in a way that I haven’t seen before, but which resonates for me.
By the way, my kitty is doing very well. She’s the one who developed kidney disease in May and I was super worried about her. We do infusions for her about twice a week, she’s switched to expensive kidney diet food, she’s regained all the weight she lost and is as fun as ever.
Y’all, I have so many tabs open due to all the interesting speakers at Micro.camp! It’s going to take me a while to process all this fascinating information.
Currently reading: Home by Marilynne Robinson š
Micro.blog for Families ideas
I’ve been curious about the “Teams” feature in micro.blog. I wonder if I could use it to bring my extended family over here from Facebook.
Features I want:
Simple account setup for family members. I’m willing to handle any complexity on their behalf, but I want it to be so easy for them. The no password/email link method would work well for my relatives.
Automatically following each other in the family, so that the Timeline at first for a new person shows all of our family posts and only our family posts. They can of course choose to follow others on MB, but to begin with, they are following everyone in the family.
Their own MB web pages are optional. If they want to grow into using their web pages they can, but they don’t have to.
iOS apps and Android apps are easy to log in to and use.